Caring Communication: gene therapy in the context of hemophilia



The aim of this project is to adapt the scientific language of gene therapy to a language understandable by the general public. The adaptation of the scientific language of gene therapy to an understandable language will be carried out through a partnership between NOVA University Lisbon and the company Pfizer Portugal, which will enable the collaboration between this project team and the Portuguese Hemophilia Association. More specifically, the project is based at the School of Social Sciences and Humanities at NOVA University Lisbon (NOVA FCSH), and the coordinating research unit is NOVA Institute of Philosophy (IFILNOVA) through the responsible researcher Maria Grazia Rossi and the researcher Dima Mohammed. The goal of the project will be achieved with the collaboration of the Linguistics Research Centre of NOVA University Lisbon (NOVA CLUNL) and NOVA Institute of Communication (ICNOVA). The project will also have the support of two institutions outside NOVA FCSH: the NOVA Faculty of Science and Technology (NOVA FCT) and the Collaborative Laboratory Value for Health – CoLAB. It is intended that this adaptation will be implemented in several documents, such as a brochure on gene therapy or a website.


Maria Grazia Rossi (IFILNOVA)
Dima Mohammed (IFILNOVA)
Ivone Ferreira (ICNOVA)
Paula Videira (NOVA FCT)
Patrícia Caneira (ICNOVA)
Raquel Silva (NOVA CLUNL, VoH.CoLAB)
Rita Francisco (NOVA FCT)
Rute Costa (NOVA CLUNL)
Sandro Loupa (NOVA CLUNL)
Sara Carvalho (NOVA CLUNL)